This is a list of the organizations and/or international IC clinicians to date and is subject to change. If you have a new organization to list or you are aware of an organization which has changed or folded, please let us know!
Argentina
ARACI Asociación Rosarina Afectados Cistitis Intersticial
President: Liliana Bacchi
Dorrego 3857-DTO.1
2000 Rosario, Argentina
Tel: 0341-4644164
http://www.araci.org.ar/
menadel_dan@hotmail.com
Fundacion Geiser: Geiser Foundation
Linkage, Research and Support Group for Rare Diseases
Avellaneda 595, Ciudad de Mendoza, Argentina
Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
fundgeiser@yahoo.com.ar
Australia
Continence Foundation of Australia
Suite 1, 407 Canterbury Road,
Surrey Hills, VIC 3127, Australia
Telephone: 03 8692 8400
Fax: 03 9380 1233
info@continence.org.au
Austria
ICA Austria
Contact: Christa Rammerstorfer
Tel: +43 (0) 676/6760 023
Email: rammerstorfer@chronischkrank.at;
Chronischkrank Österreich
kontakt@chronischkrank.at
Belgium
Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
http://www.icpb.be
info@icpb.be
Bolivia
La Paz IC Support Group
Maria Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo
Brazil
Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
Email – urologia@gmail.com
Skype ascafuri
Facebook – www.facebook.com/urologia
https://www.facebook.com/clinicaarielscafuri/
Fernando Almeida, MD. PhD
Female Urology & Voiding Dysfunction
Federal University of Sao Paulo UNIFESP-EPM
Tel: 55-11-5576 4086
website: www.drfernandoalmeida.com.br
University hospital website: www.uroepm.com.br
Canada
Kitchener-Waterloo IC Support Group – ONTARIO
Contact: kwicsmail@gmail.com
Calgary Interstitial Cystitis (IC) Group
Czech Republic
Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz
Denmark
IC Foreningen
Chairman: Elly Jung
http://www.icforeningen.dk/
graphicsd@gmail.com
France
Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris, France
http://asso-afci.org/
Association Francaise d’Algies Perineales & Nevralgies Pudendales (AFAP-NP)
President: Marie Boutet
60 rue Truffaut
75017 Paris, France
http://www.afap-np.com
email: contact@afap-np.com
Germany
IC-Netforum.de
https://www.ic-netforum.de
Sybille Adamsen
Tel.: 022054479
Email: ic-netforum@t-online.de
Greece
Center for Urologic and Pelvic Pain
Contact: Konstantinos Kalyvas, MD
Chalkidis 51, Building A2
GR 555 35
Pilea, Thessaloniki
Makedonia, Greece
Tel-Fax 0030 2310-32 40 20
http://www.cppc.gr/
kalyvas@cppc.gr
India
Interstitial Cystitis India (ICI)
Ms. Balaka Basu
icindiaorg@gmail.com
Blog – http://interstitialcystitis-india.blogspot.in
Facebook – https://www.facebook.com/groups/1803197073289466/
Israel
The Israeli Association For Bladder Syndromes
Yafit Avidan
https://www.shalpuchit.co.il
Italy
Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma ITALY
http://www.aicionlus.org/
Japan
Comfortable Urology Network (CUN)
http://www.hainyo-net.org
info@hainyo-net.org
Netherlands
Interstitiële Cystitis Patiëntenvereniging
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
http://www.icpatienten.nl
info@icpatienten.nl
New Zealand
New Zealand Painful Bladder Support Group (NZPBSG)
Chairman: Dot Milne
65 St. Andrews Hill Road, Christchurch 8081, New Zealand
Email: dot@nzpbsg.org;
Norway
NOFUS
Telefon : 55 95 35 88 – 55 33 09 30
Telefaks : 55 33 09 31
http://www.nofus.no/
kvarste@online.no
Poland
Piotr Radziszewski MD
Department of Urology
Warsaw School of Medicine
pradziszewski@wum.edu.pl
Portugal
Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto, Portugal
paulodinisoliveira@gmail.com
Ana Charrua Cordeiro PhD,
Porto University
anacharr@gmail.com
Romania
Andrei Manu-Marin, MD
website: http://www.cistita.ro
andri_66@yahoo.com
Asociatia de Cistita Interstitiala si Reabilitare Perineala
https://www.facebook.com/perineu/
South Africa
Mpho ya Lesedi (MLO)
Chair: Maureen Morapeli
Info@mylesedi.co.za
https://www.facebook.com/YaLesedi/
Spain
ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com
Asociacion Catalana de Afectados de Cistitis Intersticial (ACACI)
also: http://www.acaci.tk
C/Pareto, 55 Atico 3a
08902 L’Hospitalet de Llobregat
Barcelona, Spain
http://www.acaci.com.es/
Sweden
Swedish Chronic Prostatitis Network (ISOP)
http://home.swipnet.se/isop/
Lennart Branthle
sm7gei@swipnet.sw
Taiwan
Taiwan Interstitial Cystitis Association (TICA)
http://www.twica.org.tw
icatw@mail.taic.doh.gov.tw
United Kingdom
Bladder Health UK
Kings Court
17 School Road
Birmingham B28 8JG
Tel: +44-(0)121-7020820
Email: info@bladderhealthuk.org
Pelvic Pain Support Network
PO Box 6559
Poole
Dorset BH12 9DP, United Kingdom
Website: http://www.pelvicpain.org.uk
info@pelvicpain.org.uk
USA
Interstitial Cystitis Network ICN (National)
PO Box 2159, Healdsburg, CA 95409 USA
tel: 1-707-538.9442
fax: 1-707-538.9444
https://www.icnetwork.org
Interstitial Cystitis Association ICA (National)
http://www.ichelp.org
International
International Painful Bladder Foundation
Burg. Le Fèvre de Montignylaan 73
3055 NA Rotterdam
The Netherlands
Tel/fax : +31-10-4613330
Website: http://www.painful-bladder.org
Updated: 12/25 – jho